DR BINDU MENON FOUNDATION
Dr. Bindu Menon foundation was started on 26th august 2013. The foundation is a non-profit organization with the focus on awareness and reducing the treatment gap of neurological disorders particularly stroke and epilepsy.
1) ‘NEUROLOGY ON WHEELS’.
2) Launch of Epilepsy APP “ EPILEPSY HELP”
3) Tele awareness Programme.
4) Free treatment for 100 epilepsy patients with monthly medicines.
5) Free treatment for 100 stroke patients with monthly medicines.
6) Free medical camps at outreach areas.
7) School and college programee.
8) Release of health related books, pamphlets and posters for the understanding of
epilepsy, headache and stroke.
9) Distribution of books, pamphlets, posters to various schools, colleges and
10) Running Stroke detection and treatment camps.
11) Adopted Pragati charity orphanage children with Epilepsy for their medical needs.
12) Adopted Vasavi old age home. Abandoned elderly with neurological complaints are taken care for their medical needs.
13) Conducting regular CME, State and national level conferences.
1) A novel project ‘NEUROLOGY ON WHEELS’ which is first time in the country has been started by the foundation. The ‘NEUROLOGY ON WHEELS’ is a rural oriented project. The team of the foundation visits the interior villages. The village head is intimated about the camp in advance. The motto followed the foundation is WE REACH, WE TEACH AND WE TREAT. After reaching the village awareness programme is held for all the people attending the camp. The talk is tailored to stroke and epilepsy where recognition of diseases and compliance of medicines is emphasized.
Later free medical camp is held where screening and detection of Epilepsy, stroke and other neurological disorders is done. Patients are distributed medicines. Drug naïve stroke and epilepsy patients who are below poverty line are incorporated into the foundation for their free medicines.
‘NEUROLOGY ON WHEELS’ camps are conducted about 100 kms away at remote areas.
2) LAUNCHED MOBILE APPLICATION FOR EPILEPSY PATIENTS EPILEPSY APP; FIRST TIME IN THE COUNTRY on 10th April 2016, 6 PM at Town hall. Renowned Singer Padmashree Dr S P Balasubrahmanyam is the Chief Guest for the occasion.
This is a free download in 3 languages; English, Hindi, Telugu.
This epilepsy app is a great help for the patients. Epilepsy is an unpredictable disease and patients can get seizures even if they miss a single tablet. Moreover if the patient gets a fit and is rushed to the hospital it is mandatory that the treating physician knows his previous medication.
This app is a comprehensive application, which will help the patient manage and guide their seizures. This mobile Application will help patients to enter all their personal data, has a seizure diary to note any events without fail. There is a medication list where patient can enter all their medication present and past with alarms for the present treatment so as not to forget a single dose. The app has an appointment tracker. Patient can upload all his investigations like scans, EEG, blood investigations. In case of seizure if a bystander has taken a video of the event the video can be uploaded in the app so that the patient can show to the doctor during his visit, which helps the doctor in making a diagnosis.
In certain patients they have aura symptoms i.e. warning before the fit. In such cases our app has an application where the patient can feed any single phone of friend or relative. During the warning time he can click on the icon it will give a ring as well as a message to the number.
The app also contains all the information about epilepsy, first aid, video and posters related to epilepsy. The App is a free app and is available in 3 languages; English, Hindi and Telugu.
Dr. Bindu Menon said that in this era of modern technology with smart phone availability with all the patients, it is mandatory that we incorporate the technology for the use of the health care. Most patients lag behind in their job for lack of confidence. In short this app will make the epilepsy patient confident and help in managing his own disease with their treating physician.
3) TELE AWARENESS PROGRAMME. A novel awareness initiative for epilepsy and stroke was launched on 12th February. A toll free number 18001020237 can be dialed and important information about stroke and epilepsy can be listened.
This initiative is first time in the country for health awareness.
4) FREE TREATMENT FOR 100 EPILEPSY PATIENTS WITH MONTHLY MEDICINES.
Camps: 39 completed
Every month 100 patients with epilepsy who are below poverty line are given free consultation and medicines. Patients also undergo free tests like EEG, biochemical investigation as and when required. 80% of epilepsy can be treated with medicines; however because of various reasons patients do not continue treatment. A counseling session is also held in each camp so that they understand the importance of treatment.
5) FREE TREATMENT FOR 100 STROKE PATIENTS WITH MONTHLY MEDICINES.
Stroke is a devastating illness and the consequences of not taking secondary prevention of stroke can be disastrous. The foundation provides free consultation and medicines for 100 people with stroke from below poverty line. Antiplatelet, statins and antihypertensive are given free of cost. Patients are also given physiotherapy, which will help them to be getting back to normal life.
Bothe epilepsy and stroke patients have their ID card issued from Dr. Bindu Menon Foundation.
6) SCHOOL AND COLLEGE PROGRAMEE (SCP)
MORE THAN 90 schools and colleges.
We conduct regular SCP’s for students so that they understand that epilepsy is not a stigma. Need for a healthy brain in the young population is required. Information about stroke recognition and importance of time is counseled. The SCP’s have been very rewarding as students are more perceptive to information about illness. We feel that, as children are the building block of the future strong society; a clear understanding of certain illness will help in making a healthy future.
DESIGN OF THE PROGRAMME
Prior permission is taken from the school officials. The SCP is held when it is a leisure hour for them. A very brief questionnaire is collected from them to know their fund of information about epilepsy.
Give facts about epilepsy and stroke and help them to fight the myths; first aid measures; dos and don’ts of epilepsy. Help them to be aware of preventable form of epilepsy. Brief them about causes and triggers of headache. Help them to recognize stroke and make them aware about the importance of ‘Time is Brain’.
Distribution of books, pamphlets and posters designed for the understanding of EPILEPSY, STROKE and HEADCAHE.
7) FREE MEDICAL CAMPS AT OUTREACH AREAS
CAMPS: MORE THAN 50
There is a lot of treatment gap in epilepsy and stroke in India. The reasons are the stigma as well as the treatment cost incurred, which can’t be borne by the patient. Keeping this in view the foundation does outreach camps at various areas so that patients who cannot travel to the town have a neurological check up, free blood sugar and blood pressure evaluated. Medicines are given free of cost.
8) RELEASE OF HEALTH RELATED BOOKS, PAMPHLETS, POSTERS FOR THE UNDERSTANDING OF EPILEPSY, HEADACHE AND STROKE.
1) Comic on epilepsy “NA PAIR SATRI;
2) Poster on ‘PREVENT NEUROCYSTICERCOSIS’ PREVENT EPILEPSY’.
3) Poster on ‘PREVENT CEREBRAL PALSY-PREVENT EPILEPSY’
4) Epilepsy information booklets in Telugu and English
5) Patient awareness guide for epilepsy in Telugu
6) Booklet in English and telugu on “KNOW YOUR HEADACHE”
7) Pamphlet on Dementia signs.
8) Booklet in English and Telugu on guide to stroke “RISE; YOUR GUIDE TO STROKE”
9) Pamphlet on signs and prevention of stroke.
9) DISTRIBUTION OF BOOKS, PAMPHLETS, POSTERS TO VARIOUS SCHOOLS, COLLEGES AND ORGANISATIONS
The educational materials are distributed to various schools, colleges and various organizations. With the help of District Medical health Officer the Comic epilepsy “NA PAIR SATRI and the Poster on ‘PREVENT NEUROCYSTICERCOSIS’ PREVENT EPILEPSY’ has been distributed to around 1000 hostels and educational institutions.
Poster on ‘PREVENT CEREBRAL PALSY-PREVENT EPILEPSY’ With the help of District Medical Health officer was distributed to 75 primary health centers, 15 community health centers, 10 urban health centers, and 3 area hospitals. Apart from that the same was distributed in various clinics and private hospitals. Posters were given to the child and welfare section.
A booklet on stroke in English and local Telugu language which covers all aspects of stroke including rehabilitation. The booklet named RISE ‘a guide to life after stroke’. The booklet was distributed to all the patients of stroke and also to the general public for awareness.
Booklet in English and Telugu on “KNOW YOUR HEADACHE”. Headache is a common complaint in school and college students. Bad life style is a an important contributing factor and the booklet gives an overview about the headache and an advice about good life style.
10) STROKE DETECTION AND TREATMENT CAMPS.
All patients undergo a detailed questionnaire regarding their dietary habits and physical activity. Blood pressure and plasma sugars are evaluated. Height and weight is checked and their BMI is calculated grading them as normal, overweight and obese. With all these risk factors evaluation the public is counseled regarding their stroke risk according to stoke risk card. Later all patients are given a short briefing on stoke regarding its symptoms, etiology and need for risk factors identification and modification. All patients interact and clear their doubts at all camps. The stroke risk score and the interaction help the public to recognize and identify stroke symptoms and risk factors.
11) Adopted Pragati charity orphanage children with Epilepsy for their medical needs.
Pragati charity an orphanage has more than140 children with special needs. There are above 50 children who have epilepsy. Dr. Bindu Menon foundation has adopted the children with epilepsy and takes care of their medical needs.
12) Adopted Vasavi old age home. Abandoned elderly with neurological complaints are taken care for their medical needs. Patients with Stroke, epilepsy and hypertension are evaluated and given free medicines.
13) CONFERENCES ORGANISED:
- Organizing Continuous Medical education Programme “Neuroscience CME” since January 2016. Each CME is credited with 2 credit hours from A P Medical Council for each CME. Jan 24th; Feb 28th; 3rd April.17th July, 28th Aug
- Organizing secretary for third annual conference ‘Pearls in clinical Neurology’ 3-4th Dec 2016. Nellore. Credited with 3 credit hours from A P Medical Council
- Organizing secretary for ‘CME on Stroke’ 2nd October 2016. Nellore. Credited with 2 credit hours from A P Medical Council
- Organizing secretary for Second annual conference ‘Pearls in clinical Neurology’ 22nd Nov 2015 Nellore. Credited with 1 credit hour from A P Medical Council
- Organizing secretary for ‘CME on Stroke’ October 2015. Nellore.
- Organizing secretary for ‘Pearls in clinical Neurology’ December 2014 Nellore.